Wow, I can not believe summer is over! School starts on Monday. We did not get to do even half of what I had planned. No worries! I'll try to keep them up during school time.
I have been doing great at work. Everyone is so nice and I seem to be learning quickly. The hours haven't been too bad and the boys are enjoying the time at the sitters.
Gavin will starting Kindergarten next week. He's so excited to be going to a big school! I am too!
I have also signed them up for Gymnastics. Classes are once a week. Teagan's is a mommy and tot class from 6-6:30 and Gavin's is from 7-8. I think they'll love it.
Another adventure we are embarking on is not one we are enjoying. In June Gavin had two seizures in one day. We were with my sister going from VA to GA. We woke up at 4 am to get started. About 2 hours in, 30 min. after Gavin fell asleep he had a seizure. We called 911 and determined everythign was fine, we should hurry and get home. Three hours later, after eating and Gavin fell asleep for 30 min. again he had another seizure. Both were about 30 sec. long. This time we took the ambulance to the hospital. We stayed overnight for observations. They ran tests (urnine, blood, CT scan) nothing abnormal came back. They had him on fluids during the stay. The doctor determined it was dehydration and exhaustion. Some kids just have seizures and are fine. She gave a recommendation that we go to a Pediatric Neurologist. Our doctor and insurance company approved this. Of course, when I called the earliest they could see us was Sept. No biggie, we thought those would be the only seizures. We were wrong.
This past weekend he had another seizure. This time we were going from GA to NC to see Joel's sister before she deploys. We left in the evening. Gavin was awake the entire time until the end. He finally went to sleep around 11pm. About 30 min. in to his sleep he has another seizure. He throws up during the seizure too. This one is about 1.5 - 2 min. long. It was very scary. It took him much longer to come to after this one. His head seemed very heavy for him to hold up and when I asked him to look at me, he looked at the opposite side of the truck, where I wasn't. After a min. or so he finally was better.
At this hospital, he was not given any tests. But they again said it was normal for kids to have seizures for no reason. They did give us Diazapan (sp?) for if he has a seizure longer than 10 min. we can use this medicine to stop it. I hope to never have to use it.
I called the Ped. Neurologist office. We are able to do the EEG next Wed. but still have to wait to see the Neurologist until the beginning of Sept.
I am hoping to figure this out. I know it's normal for kids to have seizures for no reason and they outgrow it. But i'm scared. I don't want to just be waiting around for another one to happen and just ehh, let it go.
Joel and I have been researching and reading alot to match his characteristics to those of other types of seizures. Like having them in his sleep when he's very exhausted, throwing up, etc.
We found one that matches his, but the cases from this one say the seizures last very long, like hours long. I am hoping that is not what we have to look forward too.
This is what we are thinking: http://www.ilae-epilepsy.org/visitors/centre/ctf/pana_synd.html
But I don't want to self diagnios, so we are anxiously waiting to talk to a doctor.
Ok!
So this is the changes that have been happening in our family. So are great and fun, others are scary but we are still a very strong and loving family. We will get through this. We will be supportive.
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